P HEMOPHILIA X NEUROPSYCH ISSUES

In the HIV/HCV and preprophylaxis era, the HGDS and other studies demonstrated that hemophilia has an impact on the cognitive performance, behavior, and attention of affected males. Although the treatment of children with hemophilia has shifted towards encouraging routine prophylaxis for those with severe and in some cases mild and moderate disease, increased participation in activities may mean that children with hemophilia continue to experience an impact of their disease. Of ∼140 HTCs, the US Centers for Disease Control and Prevention (CDC) lists nine that incorporate clinical psychologists or neuropsychologists in a comprehensive care team, but barriers to reimbursement for neuropsychological assessment may limit the ability to routinely refer children with hemophilia for testing, and to specifically evaluate those with prior ICH or head injury, poor school performance, and behavioral problems noted by parents and teachers